How We Protect Your Genetic Data—A Behind-the-Scenes Look

At Fore Genomics, we understand that your child’s genetic data is deeply personal and demands the highest level of protection. You’ve trusted us to support your family’s health journey, and we take that responsibility seriously. In light of increasing public concern around data security, we want to show you exactly how we work to keep your data private and secure.

Built on a Foundation of Trusted Security Standards

We partner with DNAnexus, a trusted and widely adopted platform used by leading hospitals and research institutions, to store and manage data securely. DNAnexus maintains rigorous compliance with key privacy and security standards, including:

• ISO 27001: An international standard for managing information security.
• HIPAA: U.S. regulation that protects your health information.
• GDPR: European data privacy law that gives you control over your personal information.
• NIST 800 family of standards, used for DNAnexus’ FedRAMP “Moderate” Authority to Operate under the sponsorship of the US Department of Health and Human Services.

“DNAnexus is committed to providing industry-leading security and privacy practices to address both current and future threats. Our security guardrails enable our customers to focus on their leading science within a continuously secure and compliant environment.”

— Loren Buhle, SVP, Risk, Quality, and Compliance at DNAnexus.

As part of our own security protocols, Fore Genomics also upholds strict access controls, policies, and training to protect your information

What This Means for You: Your data is protected by the same high standards trusted by leading healthcare organizations. You can review DNAnexus’s full compliance certifications at trust.dnanexus.com, or learn more at dnanexus.com.

Protecting Against Hacks and Unauthorized Access

To safeguard your data:

• All information is encrypted, meaning it’s locked and unreadable without proper authorization.
• Data is stored in high-security facilities with strict protections.
• Only a limited number of authorized team members can access your data, and their access is governed by strict internal protocols and logged for accountability.

You Control Who Sees Your Data

Fore Genomics maintains a strict policy of transparency and user control when it comes to data sharing. We do not share any personal or genetic information without your explicit consent. All sharing is conducted on an opt-in basis only, and our compliance with HIPAA and GDPR ensures we follow stringent standards for data privacy, protection, and minimization (storing the minimum amount of personal data necessary to achieve a specific purpose).

Contributing to Research Is Optional

Some families like to contribute their fully anonymized data to help advance pediatric genetic research. If that’s something you’re interested in, you can easily opt in.

You Own Your Data

You retain full rights and control over your child’s genetic data and personal information. In alignment with DNAnexus’s platform principles, Fore Genomics ensures that you can access your data or request its deletion at any time.

Final Thoughts: Why This Matters

We chose DNAnexus as our data partner because they share our values of transparency, privacy, and trust. From strict compliance to hands-on control, our systems are built to protect your child’s most personal information.

If you have questions about how your data is handled or want to learn more about our privacy practices, reach out to us at [info@foregenomics.com].

Thank you for placing your trust in Fore Genomics. Your family’s privacy and safety will always be our priority.

Disclaimer: While Fore Genomics and DNAnexus take extensive precautions to protect your data, no digital system can be 100% secure. Some risks, such as those related to user device security, internet access, or third-party misuse, may occur outside the control of DNAnexus. We continuously assess and enhance our privacy and security practices to mitigate evolving threats.